An Announcement for FD Hope Supporters

Since 2001, FD Hope has funded medical research to benefit individuals with Familial Dysautonomia (FD), and to advance the scientific and medical understanding of the FD mutation. By supporting clinically relevant scientific research, FD Hope has sought to improve the lives of individuals with FD, with the goal of developing treatments to halt the progression of this devastating disease.

FD Hope is very grateful for the support of our donors, whose generosity made possible the many research advances funded by FD Hope, starting in June 2001 when FD Hope initiated the first ever survey of GI symptoms in FD. The survey results along with FD Hope’s book, “The GI Tract in Familial Dysautonomia,” were presented to gastroenterologists and GI researchers at the international gastroenterology conference, DDWC, held in Atlanta, GA. Through the years, FD Hope continued to provide funding to support research that furthered understanding of genetics, the mechanics of dysautonomic crisis, the impact of nutritional approaches, and more.

As of December 31, 2019, FD Hope no longer exists as a charitable organization. We have been pleased to see the expansion of medical research, funded by supporters of the Familial Dysautonomia Foundation, Inc. The Familial Dysautonomia Foundation, Inc. was formed by parents of children with FD in 1951, and today, the Foundation works for the benefit of all people afflicted with FD by supporting medical care and scientific research, as well as conducting social service and public awareness programs.

FD Hope has donated remaining funds to the Familial Dysautonomia Foundation, stipulating that these funds will be used to support medical research, as originally intended. We encourage you to donate generously to the Familial Dysautonomia Foundation so individuals with FD can continue to benefit from medical discoveries and treatment advances. For more information, visit the Familial Dysautonomia Foundation’s website: