An Announcement for FD Hope Supporters
Since 2001, FD Hope has funded medical research to benefit individuals with
Familial Dysautonomia (FD), and to advance the scientific and medical
understanding of the FD mutation. By supporting clinically relevant
scientific research, FD Hope has sought to improve the lives of
individuals with FD, with the goal of
developing treatments to halt the progression of this devastating disease.
FD Hope is very grateful for the support of our donors, whose generosity
made possible the many research advances funded by FD Hope, starting in June
2001 when FD Hope initiated the first ever survey of GI symptoms in FD. The
survey results along with FD Hope’s book, “The GI Tract in Familial
Dysautonomia,” were presented to gastroenterologists and GI researchers at
the international gastroenterology conference, DDWC, held in Atlanta, GA.
Through the years, FD Hope continued to provide funding to support research
that furthered understanding of genetics, the mechanics of dysautonomic
crisis, the impact of nutritional approaches, and more.
As of December 31, 2019, FD Hope no longer exists as a charitable
organization. We have been pleased to see the expansion of medical research,
funded by supporters of the Familial Dysautonomia Foundation, Inc. The
Familial Dysautonomia Foundation, Inc. was formed by parents of children
with FD in 1951, and today, the Foundation works for the benefit of all
people afflicted with FD by supporting medical care and scientific research,
as well as conducting social service and public awareness programs.
FD Hope has donated remaining funds to the Familial Dysautonomia Foundation,
stipulating that these funds will be used to support medical research, as
originally intended. We encourage you to donate generously to the Familial
Dysautonomia Foundation so individuals with FD can continue to benefit from
medical discoveries and treatment advances. For more information, visit the
Familial Dysautonomia Foundation’s website:
https://familialdysautonomia.org
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